Proton Therapy Links
The list of proton therapy centers
The list of Proton Therapy Center: www.proton-therapy-centers.com. To the best of my ability I believe this list is up to date.If you know of any additions, updates, or corrections, please let me kow. As I visit and interview people at various centers, I will add blog entries in the blog section. I am sending very detailed questionnaires to all of the proton centers so as to get more information than just their names and addresses. The list will have links to these questionnaires. I'm not the only one with a list of proton centers. Here are two other sources.
National Association for Proton Therapy: www.proton-therapy.org
Particle Therapy Cooperative Group (PTCOG) list of proto centers (and other particle modalities) worldwode: https://www.ptcog.ch/index.php/facilities-in-operation
My book, Best Treatment or Prostate Cancer, Proton Beam Therapy, has a list of links in the back which were mentioned somewhere in the book. Here's a link to the book website, to those links:
My treatment was at the Provision Center for Proton Therapy, for which I have a very high regard. It's worth taking a look at their website: www.provisionproton.com.
At Provision, those willing to share their experience with others are called Proton Ambassadors. No doubt every center has a similar group. I will be locating those groups and putting links here. For now, here is the one for Provision. www.provisionproton.com/proton-ambassadors. Not to be outdone, women treated at Provision have started their own group. Here's an article about it: http://provisionproton.com/blog/2015/10/01/support-group-launched-for-proton-therapy-gals/ They have their own website and Facebook page. See www.protongals.com.
At Loma Linda University, they have the group started by Robert Marckini more than fifteen years ago, called Brotherhood of the Balloon. The name refers to a rectal balloon used during treatment for prostate cancer. However, a new technology has made the balloon unnecessary, so they may need to change their name to the Brotherhood of the Beam. www.protonbob.com. Loma Linda University was the first proton therapy center to open, back in 1990. They snapped up the best names and URLs, being www.protons.com and a blog address which they aren't using, www.protonblog.com. (Proton used singularly, as in www.proton.com turns out to be for a car dealership. Bummer. There is a car called the Proton, "It's all in the drive.") Their phone number at Loma Linda is even 1-800-protons.
The proton support group at M. D. Anderson in Houston, Texas, is called Proton Pals: www.protonpals.org.
Joe Tuftnell was the first Brit treated for prostate cancer at the proton center in Prague. Like me, he wants to get the word out, so he started his own group called . . . you guessed it, Proton Ambassadors. You can read about him here: https://www.thesun.co.uk/living/2408338/cancer-patient-gives-up-traditional-treatment-for-revolutionary-proton-beam-therapy-to-avoid-ruining-his-quality-of-life/ He has a very nice website with some good charts comparing protons to other treatments, found at: http://www.protonambassadors.co.uk/
Hampton University Proton Center keeps track of its graduates here: http://www.hamptonproton.org/cancer-support-from-proton-therapy-patients/
Many centers have Facebook pages. Here's one from the University of Florida Proton Center; https://www.facebook.com/FloridaProton/ and here's on from the proton center in Prague: https://www.facebook.com/ProtonTherapyCenterCzech/.
I will continue to add links here, for support groups, organizations, blogs, and other sources of information about proton therapy. Please come back and visit from time to time. If you know about links I should add, please send me a note.